Thursday, June 7, 2012

                                 EB Research and Clinical Trials

 

Below is a list of web sites that detail past and current research and clinical trials for the treatment of Epidermolysis Bullosa : )  It is not a complete list, and I will update as I get new/more information.  I hope these sites are helpful and brings HOPE to all!




http://www.rareconnect.org/en/community/epidermolysis-bullosa/news

http://eb-resource.com/tag/epidermolysis-bullosa-clinical-trials/

http://www.debra.org/research-trials

http://nyp.org/advances/epidermolysis-bullosa-patients.html

http://www.ebkids.org/research/index.php

https://ebcare.patientcrossroads.org/index.php?option=com_content&view=article&id=403&Itemid=479&ml=5&mlt=system&tmpl=component&lang=en

http://freedownload.is/ppt/eb-clinical-trials

http://clinicaltrials.gov/ct2/show/NCT00587223
Stanford

http://dermatology.stanford.edu/research/research.html

http://dermatology.stanford.edu/gsdc/eb_clinic/trials/eb-ebcrc.html

http://dermatology.stanford.edu/gsdc/eb_clinic/

http://dermatology.stanford.edu/gsdc/eb_clinic/trials/eb-mosaicism.html

Minnesota
 

http://bmt.umn.edu/world-class-bmt-program/epidermolysis-bullosa-clinical-trial.php

http://www.health.umn.edu/eb/

http://bmt.umn.edu/world-class-bmt-program/epidermolysis-bullosa.php



Blogs
http://ingarrettsmemory.blogspot.com/2012/05/eb-clinical-trials.html

http://patriceandmattwilliams.blogspot.com/2009/09/expanded-clinical-trials-for-eb.html